Title says it all. I have my report from my neurologist and it is now 100% sure I have inherited SCA1 from my mother.
The symptoms will kick in mostly during the 4th or 5th (best case) decade of life.
At around 2-4 years after the first signs of symptoms (motoric and verbal inhibitions) it is quite normal to be stuck in a wheelchair permanently while loosing motorical functions as time goes on.
The research around a therapy of spinocerebular ataxias wich are neurodegenerative diseases, are still in play and there is no healing as of right now.
NOW: Bitcoin helps me keep being optimistic. In 10-20 years I hope I can use my stack to push the research and find a lab that studies for a promising therapy plus put it into research foundations for ataxia and so on.
There is good research done today but it could be better.
I think the majority of corporations especially pharma and such will stay in a stinky fiat-oriented system, but I think Bitcoin is likely gonna invade fiat-pharma corporations wich results a push for further innovation.
And if not: hell, my life is shorter but at least I got my bitcoins to spend it and give them to my kids maybe.
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